Say Hello
Please take the time to write a short message to Edward.
All messages are read by Edward’s family and each is so gratefully received. It’s impossible to explain how important messages of support can be. They help to lift everyone’s spirits and ensure that awareness of DMD continues to build around the world.
Just click on the link below to leave yours.
Thanks for visiting Say Hello To Edward today. Your support means everything to us..
To post a message click HERE. |
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Hello Edward, Just been listening to your Mum on the radio. She is making awareness of Duchennes. I live in Devon but am always llistening to Manchester stuff as it's my homtown. Good luck with campaign. Niki
Niki - Devon
(01 Oct - 10:24)
Hello Edward and family,
What a brilliant and inspiring video and song. I'm sure it must mean so much to you...I've never 'met' anyone who had a song written in their honour before!
Wishing you happy days, lots of love and fun times, from Jane
Jane - Cheshire, UK
(30 Sep - 14:43)
Hi Edward,
I heard you had DMD, that must be tough. But I wanted to tell you and your family that I will soon be moving in with my longtime boyfriend that is 24 and has it too, he is almost finished university and getting a job! He uses a powerchair and needs some help, but he is still pretty healthy and lives a normal life! DMD is rough, but there are guys that are living into their thirties and fourties with it now, so keep your chin up, maybe there will be a cure when you are older!
Ali - Newfoundland, Canada
(22 Sep - 12:32)
Hi Edward and family, i would just like to leave a little message to say how brave and beautiful you are. I too have a little boy who is 8yrs old that has Duchenne so i understand the feelings and heartache you go through.My little mans name is Brandon and he like you is my inspiration to keep going and to fight this deadly disease you boys deserve a happy life and i hope and pray you all get it....your family Edward must love you very much so keep fighting little man cos your not alone...
carollyn - australia
(21 Sep - 06:43)
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